Long weekend

Kayla is still in the hospital and will be staying until tomorrow. Dr. Harrod offered to send her home and have a nurse come out to the house for her IV fluids but she felt better staying in the hospital. So that's what we do cause it's all about what Kayla feels comfortable with. Dr. Harrod said she would adjusting the magnesium in the chemo meds for Kayla's next strong treatment in 6 weeks again and watch her very closely.
I had to meet the boys at home so I called my aunt Barbara to see if she could come sit with Kayla and she did. Kayla does not like being by herself.
I went home and waited for the boys to get home from their rides. Packed lunches,cooked dinner and got them ready for school and grandma. Then we went back up to the hospital to be with Kayla. We all did homework for about an hour. Then we all went down to the family kitchen and had dinner together. Kayla started feeling bad and had to go back to the room. The boys were great they helped clean up dinner and brought the rest of the dinner back to the room for me. They are great when I need them most of the time. They are there for Kayla and I. Love you boys. We played monopoly and watched a little TV. Then Grandma came and spent some time with Kayla and get the boys. I want to thank everyone for all their help. I couldn't do this without you guys.
Kayla has done a great job drinking her water today. She drank 100 cc every hour. Thank you for your prayers. Hopefully we will be home by 3:00 tomorrow. In time for the boys!!!
Kayla get her next small dose of chemo in 4 days.
Thank you for all your thoughts and prayers

Sunday

Kayla started feeling better last night. Her Nana came to see her so it allowed me to run home and let the dog out. While I was home I thought make Kayla's favorite Ck noodle soup. Then she requested chocolate chip cookie dough ice cream. I stop at El Gallo for Nana and I. Kayla ate all her soup.. That was great. It was the most she had eaten since Friday afternoon. They were able to get her levels back in check last night. Her dizziness and buried vision went away. I really thought we might go home today, but Dr. Lockhart felt she still needed to stay one more day. I was perfectly OK with this. We went down to the cafe to eat lunch and got her walking. She just doesn't feel good when she is up standing and walking. Linda and Alissa came to visit her today and Alissa and her play monopoly while I got to visit with Linda. Kayla wanted dinner and the cafe was closed so we order Chinese food. She ate pretty good. Still not drinking enough. This girl does not like to drink fluids!!! We need lots of prayer for this. The boys came to visit and they stayed with their daddy. Boy I miss them.They came with lots of hugs...I love it. Hopefully we are going home tomorrow. Friday will be here before you know it and Kayla will be getting a dose of Vincristine.
On a lighter note.... I finally donated my hair on Wednesday. It's gone and short!!! I will post pictures as soon as I take some.
Keep you prayers coming Kayla need them.
Thanks for your thoughts.
DO NOT FORGET ABOUT THE SINGING CHRISTMAS TREE THIS WEEKEND. DATES ARE LISTED BELOW!!!
KAYLA HAS BEEN WORKING HARD TO KEEP UP SHE WOULD LOVE TO SEE EVERYONE THERE SUPPORTING HER AND ENJOYING THE SHOW.IT'S OUT OF THIS WORLD!!!

Day after Chemo

Kayla has slept through the night and day. She was complaining of dizzyness and buried vision and of course nausa. They check her magneiusm count and found it to be high and potassisum was low. We were hoping to go home today but Kayla was not drinking enough fluids in order for her to be released. I also knew that she would not drink enough at home. It is very important to drink and release as much as possible within the next 72 hours. If not we will be dealing with kidney issues. WE DON"T WANT THAT!! So she will stay until Sunday.
Pray that she drinks enough fluid and strength.

Kayla Starts Chemo

Kayla managed to get through the week. We had to be at Dr. Harrod's office at 9:15 am. They went over everything with us, accessed and checked over Kayla. Then they sent us to the hospital. We had to get Pizza before we checked in. That's what my angel wanted for lunch. So they started her fluids about 1:00 pm. They started her with one bag and the 2nd bag was given over a 3 hour period. She was getting 3 different chemo meds. One she had during radiation, another was a pill and the last and hardest was Cisplatin which is given over a 6 hour period.
Kayla was invite to Sydney's Birthday Party but of course could not make it. So Sydney wanted to bring the party to Kayla. It was sweet about 10 girls come up to the hospital,brought Kayla a cupcake and spent some time with her. She really enjoyed that!! Thanks!!!!
Kayla was feeling pretty good until about 11:oopm. her stomach really started to hurt her so they gave her a pain med. She of course went from pain to passed out. She finished her Cisplatin about 12:30am.
Please pray for comfort,strength and ability to drink enough fluids.

5 Days until Chemo

Kayla had a really bad weekend. We went to the Chuy's Parade and the dollar movie. The kids brought a toy to donate. I want my kids understand the power of giving without expecting to receive. Kayla is a tough cookie cause she felt horrible but did not want to be home. I always follow her cause only she knows how she is feeling. We went Dr.Harrod's this morning cause she had been vomiting and not feeling good. She got fluids and an x-ray of her stomach. We noticed she had alot of stuff that needed to come out. So Dr.Harrod put her on some meds to help clean her out and get ready for Chemo on Friday. Needless to say it was a very tough week. Not much sleep and alot of vomiting. by Wednesday she finally moved her valves and felt a little better by Thursday.
Please keep your prayers coming. We are getting ready for the tough road ahead of us.